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Epidemic: The Scars of Smallpox

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Tue, 07 Nov 2023 10:00:00 +0000

In 1975, smallpox eradication workers in the capital of Bangladesh, Dhaka, rushed to Kuralia, a village in the country's south. They were abuzz and the journey was urgent because they thought they just might get to document the very last case of variola major, a deadly strain of the virus.  

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When they arrived, they met a toddler, Rahima Banu. 

She did have smallpox, and five years later, in 1980, when the World Health Organization declared smallpox eradicated, Banu became a symbol of one of the greatest accomplishments in public health. 

That's the lasting public legacy of Rahima Banu, the girl. 

Episode 8, the series finale of “Eradicating Smallpox,” is the story of Rahima Banu, the woman — and her life after smallpox. 

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To meet with her, host Céline Gounder traveled to Digholdi, Bangladesh, where Banu, her husband, their three daughters, and a son share a one-room bamboo-and-corrugated-metal home with a mud floor. Their finances are precarious. The family cannot afford good health care or to send their daughter to college.

The public has largely forgotten Banu, while in her personal life she faced prejudice from the local community because she had smallpox. Those negative attitudes followed her for decades after the virus was eradicated.

“I feel ashamed of my scars. People also felt disgusted,” Banu said, crying as she spoke through an interpreter.

Despite the hardship she's faced, she is proud of her role in history, and that her children never had to live with the virus.

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“It did not happen to anyone, and it will not happen,” she said.

The Host:

Céline Gounder
Senior fellow and editor-at-large for public health, KFF Health


@celinegounder


Read Céline's stories

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Céline is senior fellow and editor-at-large for public health with KFF Health News. She is an infectious diseases physician and epidemiologist. She was an assistant commissioner of health in New York City. Between 1998 and 2012, she studied tuberculosis and HIV in South Africa, Lesotho, Malawi, Ethiopia, and Brazil. Gounder also served on the Biden-Harris Transition COVID-19 Advisory Board. 

Voices From the Episode:

Rahima Banu
The last person in the world to have a naturally occurring case of the deadliest strain of smallpox 

Nazma Begum
Rahima Banu's daughter

Rafiqul Islam
Rahima Banu's husband

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Alan Schnur
Former World Health Organization smallpox eradication program worker in Bangladesh

Click to open the transcript

Transcript: The Scars of Smallpox

Podcast Transcript Epidemic: “Eradicating Smallpox” Season 2, Episode 8: The Scars of Smallpox  date: Nov. 7, 2023 

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Editor's note: If you are able, we encourage you to listen to the audio of “Epidemic,” which includes emotion and emphasis not found in the transcript. This transcript, generated using transcription software, has been edited for and clarity. Please use the transcript as a tool but check the corresponding audio before quoting the podcast. 

Céline Gounder:  Just when you thought smallpox was gone someplace, it could roar back. 

Alan Schnur: We were aware that in some other countries there had been celebrations and then later found, uh, there had been ongoing transmission that wasn't detected. 

Céline Gounder: The virus was persistent and slippery, but smallpox did end, and Alan Schnur was there when it did. 

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Alan Schnur: I was one of the team members who was the first international responders to the last case of variola major smallpox. 

[Upbeat music begins playing.] 

Céline Gounder: The beginning of the end was 1975 in Bangladesh. Alan was in the capital city of Dhaka, meeting with other fieldworkers from the World Health Organization. They were gathered in a Quonset hut. If you've ever seen a World War II movie, you know what it looks like: Picture a big tin can cut down the middle — resting on its side. 

The meeting was uneventful, which was a change of pace. When Alan first came to Bangladesh, smallpox cases had exploded. The country was reeling from a war for liberation. 

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But by that day, the outbreak had fizzled. 

Alan Schnur: Things had gone very quiet. No reports of any active smallpox cases despite searches going on for several weeks. 

Céline Gounder: Alan remembers that the walls of the Quonset hut were covered with maps and manuals documenting their work, and they kept a running tally of suspected cases. 

Alan Schnur: And there was a big zero up there on the wall staring down at us for this whole meeting. So we were feeling pretty good at the time. 

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Céline Gounder: Not a single case of smallpox across the entire country. The team was starting to let themselves feel optimistic. Maybe they'd stamped out the disease here. 

[Upbeat music ends.] 

Alan Schnur: And then there was a telegram received saying one smallpox case found in Kuralia village in Bhola. 

[Suspenseful music begins playing.] 

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Céline Gounder: The next morning, Alan and the head of the W–H–O mission in Bangladesh took a slow boat through snaking canals to Bhola Island. 

[Ambient sounds of a boat on the water play in the background.] 

Céline Gounder: Day turned into night. Night into day. 

Another boat, then a Land Rover. 

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Alan Schnur: And the last half-mile, we had to walk to the house where the case was. 

Céline Gounder: Finally, they made it. 

Alan Schnur: It was a very simple house, certainly poorer than the average Bangladeshi house. 

Céline Gounder: Inside was the patient, a little girl. Rahima Banu. 

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Alan Schnur: She was very scared. She was trying to hide behind her mother's sari. So she was frightened and trying to to run back inside the house, but her mother kept her there. 

Céline Gounder: There's an iconic of Rahima and her mother from that day. Sitting on her mother's hip, Rahima looks wary. But Alan says all around her there was an air of excitement among the public health workers. 

This could finally be it: the last person with naturally occurring variola major smallpox. 

Alan Schnur: And we didn't find any more active cases after Rahima Banu. 

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[Suspenseful music fades out.] 

Céline Gounder: The WHO continued to monitor Bangladesh for a of years, but that's where the story ends for the deadliest version of smallpox. With Rahima Banu, the girl. 

She became a symbol of — a poster child for — one of public health's greatest achievements. But she did not share in the prestige or rewards that came after. 

In this final episode of our series “Eradicating Smallpox,” I travel to Bangladesh to meet with Rahima Banu, the woman. We'll hear how smallpox shaped her life and wrestle with some of the questions that her reality demands of public health. 

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I'm Dr. Céline Gounder, and this is “Epidemic.” 

[“Epidemic” theme music plays then fades to silence.] 

[Ambient sounds of chickens squawking in the courtyard outside of Rahima Banu's home play.] 

Céline Gounder: Many people have tracked down Rahima Banu since 1975. 

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I'm just the latest in a line of public health specialists and curious journalists. 

She lives in a village not far from where smallpox workers found her nearly 50 years ago. 

As I enter the courtyard of her home, there are clothes hanging on the line. The house is made from bamboo and corrugated metal. The mud stairs that lead inside are dotted with moss. 

Inside is one giant room with a partition. On the far side are cots where the family sleeps. On the near side is a table, where I sit with Rahima. 

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She introduces herself while her husband and two of her daughters sit behind her. 

[Rahima speaking in Bengali fades under English translation.] 

Rahima Banu: I am Rahima Banu from Bangladesh. Rahima Banu of smallpox fame. 

Céline Gounder: Rahima wears a cobalt-blue scarf with white flowers — it's draped over her head and shoulders and modestly tucked under her chin. A small gold stud sparkles from her nose. 

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[Sparse music begins playing softly.] 

Céline Gounder: She has only a few memories of smallpox. She remembers health workers drawing blood from her fingers, for example. But most of the story that's made her famous, she knows only from what she's been told. 

[Rahima speaking in Bengali fades under English translation.] 

Rahima Banu: There were lesions like this all over the body. My mother said that if you poked them with a lemon cutter, the water rolled down all over the body. As the juice of the dates rolled down when being cut, my blood also dripped like that. 

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Céline Gounder: While Rahima recovered from smallpox, her family was forced to stay at home while the health workers set a mile-and-a-half radius where they monitored every fever and vaccinated every person. 

Two guards monitored the doors of Rahima's home 24 hours a day. Otherwise, Rahima says, her father would have tried to leave to go find work. He was the lone income earner in the family. 

[Rahima speaking in Bengali fades under English translation.] 

Rahima Banu: If he had run away, the disease would have spread to other places. That's why they did not allow us to go anywhere. 

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Céline Gounder: Alan Schnur says he hired Rahima's father so the family would have food and an income while they were isolated. And later — a small group of public health workers tried to cobble together some kind of sustainable support for Rahima's family. 

But, eventually the WHO's help ended. And, ultimately, attempts to prop up the family's future fell through. 

[Sparse music swells, then fades to silence.] 

Céline Gounder: Little Rahima grew up. She married and had a family of her own. 

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The scars of smallpox are visible on her face, but they are faint. Mostly you notice her eyes. They are warm; her slight smile is welcoming. 

But Rahima says when visitors like me to visit, they mostly want to know one thing: Is she still alive? 

[Rahima speaking in Bengali fades under English translation.] 

Rahima Banu: But no one wants to know how I am living my life with my husband and children, whether I am in a good condition or not, whether I am settled in my life or not. 

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Céline Gounder: The stories about Rahima are not usually about her life today. They're about her place in history — as an international symbol of one of the crowning achievements of public health. 

But listening to Rahima speak, I'm caught off guard by the pain in her voice. 

[Rahima speaking in Bengali fades under English translation.] 

Rahima Banu: I feel ashamed of my scars. People also felt disgusted. [Rahima cries.] 

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Céline Gounder: Rahima is in tears. My partner, Redwan, asks Rahima's daughter to bring some water. 

Redwan Ahmed [in Bengali]: Will you give her some water? 

[Solemn music begins playing.] 

Céline Gounder: She is around 50 years old when I visit — and the faded pockmarks on her body are perhaps the least of what smallpox left behind. Rahima begins to talk about the emotional scars smallpox left on her family, her life. 

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And how living in poverty has made things even harder. As an adult, when she had health problems, there was no outside care. No public health workers bustling around, ready to help. 

She tells me about a time when she had intense vomiting and fevers. 

[Rahima speaking in Bengali fades under English translation.] 

Rahima Banu: I was bedridden for three months, but I still could not go to a good doctor because I could not afford it. 

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Céline Gounder: Rahima says the doctor she did see prescribed her cooked fish heads. She also had trouble with her vision for years. 

[Rahima speaking in Bengali fades under English translation.] 

Rahima Banu: I cannot thread a needle because I cannot see clearly. I cannot examine the lice on my son's head. I cannot read the Quran well because of my vision. 

[Solemn music fades out.] 

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Céline Gounder: Rahima and her husband, Rafiqul Islam, have four nearly grown children, three daughters and a son. 

The couple's marriage was arranged, and Rafiqul didn't know Rahima had had smallpox. 

After he found out, people would taunt him, saying he'd married a cursed girl. Still, Rafiqul accepted her. 

His family did not. 

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[Somber music begins playing.] 

Céline Gounder: Rahima says her in-laws thought her scars — or smallpox itself — would be passed on to her children. 

[Rahima speaking in Bengali fades under English translation.] 

Rahima Banu: My father-in-law and mother-in-law never touched my children with their fingers like one touches other children. 

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My father-in-law, mother-in-law,  sister-in-law, and brother-in-law never saw me in a good light. 

Céline Gounder: Rahima says she is still living in that suffering. Rafiqul becomes tearful as we sit around their table listening. And at times he gets up and stands behind the partition, as if he doesn't want us to see his emotion. 

Rafiqul says he felt powerless watching how his family treated his wife. 

[Rafiqul speaking in Bengali fades under English translation.] 

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Rafiqul Islam: Do you get it? As a husband, I couldn't do anything to stop my parents or my siblings. One of my sisters did most of the abuse. I couldn't do anything but stand in a corner as she was abused. 

[Somber music ends.] 

Céline Gounder: Their middle daughter is named Nazma Begum. She is tall like her dad — you can tell she's an eager student. For most of Nazma's life, people like me have come here to talk with her mother about smallpox. 

I ask Nazma what it's like to be the child of an international symbol. 

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[Nazma speaking in Bengali fades under English translation.] 

Nazma Begum: The good effect is that it is nice to see that you and other people come here. When people come, I like that a lot. The way I feel nice when guests come — it is the same feeling. Apart from that, there was no other effect. It did not help me in any way in my studies or financially. 

Céline Gounder: The family's only income is the money Rafiqul earns peddling a rickshaw. On a good day, he brings home 500 takas — not quite 5 U.S. dollars. 

Sometimes he brings home  nothing. 

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Nazma finished a year of college, but her parents can't afford to pay for her education anymore. She seems desperate to go back to school, but at the time of my visit, the family had arranged for her to get married instead. 

The cost of a dowry is less than the cost of sending her to school. It's a common story here in Bangladesh. But, Nazma says, the people who seek out her mother to talk about smallpox are not really curious about Rahima's children. 

[Nazma speaking in Bengali fades under English translation.] 

Nazma Begum: What are their children doing? Up to what class have they studied? In what condition are they living? What do their children want? I think that's what they should have asked more about. But in this matter, they have no interest or do not want to know. 

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[Reflective music plays softly.] 

Céline Gounder: Nazma is talking to me, but maybe she's indicting me, too. 

Journalists, public health experts, and government officials — we all return to Rahima again and again. Whenever there's a big anniversary. Or when we're looking for smallpox lessons — to get through the latest pandemic. And it is a story worth telling. 

But then we leave. And Rahima is left behind. 

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We write up our reports, or publish our podcasts — then raise money around that research and journalism. 

In these sometimes sanitized stories, the reality of Rahima's life after smallpox is left out. 

She goes back to her family that can't afford to see a doctor or send their daughter to university. 

It feels extractive — as if we take from Rahima only what we need. And I can't help but wonder whether I owe her something more. 

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[Reflective music fades out.] 

Céline Gounder: There's this moment from my time with Rahima that I found later, when I was reviewing the tape from the interview. Initially, I missed it because I don't speak Bengali. While I was adjusting my recording levels, Rahima and the interpreter are talking about how she'll introduce herself, and she says maybe we could publish that her son is looking for work. 

[Clip of Redwan and Rahima speaking Bengali plays in the background.] 

Céline Gounder: It's such a simple request, so core to what's on her mind and what she wants. 

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The interpreter is skilled and polite. He tells her he can't promise anything but maybe it will come up in the interview. 

Of course, it doesn't — at least not exactly. But at the end of our time together, I ask Rahima what she thinks people should know about her experience. 

[Optimistic music begins playing.] 

[Rahima speaking in Bengali fades under English translation.] 

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Rahima Banu: Who wants to know about me? My only dream was to make my son a man. And I wanted to repair the condition of my house, live a better life with my family, and keep my children well. This is my only dream. If I had some financial ability, I would have arranged my daughter's marriage to a better family. It is the pride of my heart. 

It is my dream. And it is my pride. This is my imagination. 

Céline Gounder: There is one way, though, that Rahima says her role in history has helped her family. 

Her children did not get smallpox. They don't live with those particular scars. 

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[Rahima speaking in Bengali fades under English translation.] 

Rahima Banu: It did not happen to anyone, and it will not happen. 

[Optimistic music fades out.] 

[“Epidemic” theme music plays.] 

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Céline Gounder: “Eradicating Smallpox,” our latest season of “Epidemic,” is a co-production of KFF Health News and Just Human Productions. 

Additional support provided by the Sloan Foundation. 

This episode was produced by Zach Dyer, Taylor Cook, and me. 

Bram Sable-Smith was scriptwriter for the episode, with help from Zach Dyer and Taunya English. 

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Redwan Ahmed was our translator and local reporting partner in Bangladesh. 

Our managing editor is Taunya English. 

Oona Tempest is our graphics and photo editor. 

The show was engineered by Justin Gerrish. 

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We had extra editing help from Simone Popperl. 

Voice acting by Rashmi Sharma, Priyanka Joshi, and Paran Thakur. 

Music in this episode is from the Blue Dot Sessions and Soundstripe. 

We're powered and distributed by Simplecast. 

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If you enjoyed the show, please tell a friend. And leave us a on Apple Podcasts. It helps more people find the show. 

Follow KFF Health News on X (formerly known as Twitter), Instagram, and TikTok. 

And find me on X @celinegounder. On our socials, there's more about the ideas we're exploring on our podcasts. 

And subscribe to our newsletters at kffhealthnews.org so you'll never miss what's new and important in American health care, health policy, and public health news. 

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I'm Dr. Céline Gounder. Thanks for listening to this season of “Epidemic.” 

[“Epidemic” theme fades to silence.] 

Credits

Taunya English
Managing editor


@TaunyaEnglish

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Taunya is senior editor for broadcast innovation with KFF Health News, where she leads enterprise audio projects.

Zach Dyer
Senior producer


@zkdyer

Zach is senior producer for audio with KFF Health News, where he supervises all levels of podcast production.

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Taylor Cook
Associate producer


@taylormcook7

Taylor is associate audio producer for Season 2 of Epidemic. She researches, writes, and fact-checks scripts for the podcast.

Oona Tempest
Photo editing, design, logo aArt

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@oonatempest

Oona is a digital producer and illustrator with KFF Health News. She researched, sourced, and curated the images for the season.

Additional Newsroom Support

Lydia Zuraw, digital producer Tarena Lofton, audience engagement producer Hannah Norman, visual producer and visual reporter Simone Popperl, broadcast editor Chaseedaw Giles, social media  Mary Agnes Carey, partnerships editor Damon Darlin, executive editor Terry Byrne, copy chief Gabe Brison-Trezise, deputy copy chiefChris Lee, senior communications officer 

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Additional Reporting Support

Swagata Yadavar, translator and local reporting partner in IndiaRedwan Ahmed, translator and local reporting partner in Bangladesh

Epidemic” is a co-production of KFF Health News and Just Human Productions.

To hear other KFF Health News podcasts, click here. Subscribe to “Epidemic” on Apple Podcasts, Spotify, Google, Pocket Casts, or wherever you listen to podcasts.

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——————————
Title: Epidemic: The Scars of Smallpox
Sourced From: kffhealthnews.org/news/podcast/season-2-episode-8-scars-of-smallpox/
Published Date: Tue, 07 Nov 2023 10:00:00 +0000

Kaiser Health News

Oh, Dear! Baby Gear! Why Are the Manuals So Unclear?

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Darius Tahir
Fri, 03 May 2024 09:00:00 +0000

Since becoming a father a few months ago, I've been nursing a grudge against something tiny, seemingly inconsequential, and often discarded: instructional manuals. Parenthood requires a lot of gadgetry to maintain a kid's health and welfare. Those gadgets require puzzling over booklets, decoding inscrutable pictographs, and wondering whether warnings can be safely ignored or are actually disclosing a hazard.

To give an example, my daughter, typically a cooing little marsupial, quickly discovered babyhood's superpower: Infants emerge from the womb with talon-strength fingernails. She wasn't afraid to use them, against either her parents or herself. So we purchased a pistachio-green, hand-held mani-pedi device.

That was the easy part. The difficulty came when we consulted the manual, a palm-sized, two-page document.

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The wandlike tool is topped with a whirring disc. One can apparently adjust the speed of its rotation using a sliding toggle on the wand. But the product manual offered confusing advice: “Please do not use round center position grinding,” it said. Instead, “Please use the outer circle position to grinding.” It also proclaimed, “Stay away from children.” In finer print, the manual revealed the potential combination of kids and the device's smaller parts was the reason for concern.

One would hope for more clarity about a doodad that could inadvertently cause pain.

Later, I noticed another warning: “If you do not use this product for a long time, please the battery.” Was it dangerous? Or simply an unclear and unhelpful yet innocuous heads-up? We didn't know what to do with this information.

We now notice shoddy instructions everywhere.

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One baby carrier insert told us to use the product for infants with “adequate” head, neck, and torso control — a vague phrase. (The manufacturer declined to comment.)

Another manual, this one online and for a car seat — a device that's supposed to protect your kid — informed with words and images that a model baby was “properly positioned” relative to the top of the headrest “structure” when more than one inch from the top. Just pixels away, the same model, slumped further down, was deemed improperly positioned: “The headrest should not be more than 1” from the top of her head,” it said, in tension with its earlier instructions. Which was it, more than one inch or not? So we fiddle and hope for the best.

I acknowledge this sounds like new-parent paranoia. But we're not entirely crazy: Manuals are important, and ones for baby products “are notoriously difficult to write,” Paul Ballard, the managing director of 3di Information , a technical writing firm, told me.

Deborah Girasek, a professor of social and behavior sciences at the Uniformed Services University of the Health Sciences, told me that for decades, for the young and middle-aged alike, unintentional injury has been the leading cause of death. That's drownings, fires, suffocation, car crashes. The USU is a federal service academy training medical destined for the armed services or other parts of the .

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Some of these deaths are caused by lack of effective communication — that is, the failure of instruction about how to avoid injury.

And these problems stretch from cheap devices to the most sophisticated products of research and development.

It's a shortcoming that's prompted several regulatory agencies charged with keeping Americans healthy, including the Consumer Product Safety Commission, the Food and Drug Administration, and the National Highway Traffic Safety Administration, to prod companies into providing more helpful instructions.

By some lights, they've had . NHTSA, for example, has employees who actually read manuals. The agency says about three-quarters of car seats' manuals rate four or five stars out of five, up from 38% in 2008. Then again, our car seat's has a five-star rating. But it turns out the agency doesn't evaluate online material.

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Medical product manuals sometimes don't fare too well either. Raj Ratwani, director of MedStar Health's Human Factors program, told me that, for a class he teaches to nurses and doctors, he prompted students to evaluate the instructions for covid-19 tests. The results were poor. One time, instructions detailed two swabs. The kit had only one.

Technical writers I spoke with identified this kind of mistake as a symptom of cost cutting. Maybe a company creates one manual meant to a range of products. Maybe it puts together the manual at the last moment. Maybe it farms out the task to marketers, who don't necessarily think about how manuals need to evolve as the products do.

For some of these cost-cutting tactics, “the motivation for doing it can be cynical,” Ballard said.

Who knows.

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Some corners of the technical writing world are gloomy. People worry their aren't secure, that they're going to be replaced by someone overseas or artificial intelligence. Indeed, multiple people I spoke with said they'd heard about generative AI experiments in this area.

Even before AI has had its effect, the job market has weighed in. According to the federal government, the number of technical writers fell by a third from 2001, its recent peak, to 2023.

One solution for people like us — frustrated by inscrutable instructions — is to turn to another uncharted world: social media. YouTube, for instance, has helped us figure out a lot of the baby gadgets we have acquired. But those videos also are part of a wild , where creators offer helpful tips on baby products then refer us to their other productions (read: ads) touting things like weight loss services. Everyone's got to make a living, of course; but I'd rather they not make a buck off viewers' postpartum anxiety.

It reminds me of an old insight that became a digital-age cliché: Information wants to be free. Everyone forgets the second half: Information also wants to be expensive. It's cheap to share information once produced, but producing that information is costly — and a process that can't easily or cheaply be replaced. Someone must pay. Instruction manuals are just another example.

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——————————
By: Darius Tahir
Title: Oh, Dear! Baby Gear! Why Are the Manuals So Unclear?
Sourced From: kffhealthnews.org//article/baby-product-instruction-manuals-confusing-technical-writing/
Published Date: Fri, 03 May 2024 09:00:00 +0000

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Kaiser Health News

California Floats Extending Health Insurance Subsidies to All Adult Immigrants

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Jasmine Aguilera, El Tímpano
Fri, 03 May 2024 09:00:00 +0000

Marisol Pantoja Toribio found a lump in her breast in early January. Uninsured and living in California without legal status and without her , the usually happy-go-lucky 43-year-old quickly realized how limited her options were.

“I said, ‘What am I going to do?'” she said in Spanish, quickly getting emotional. She immediately worried she might have cancer. “I went back and forth — I have [cancer], I don't have it, I have it, I don't have it.” And if she was sick, she added, she wouldn't be able to work or pay her rent. Without insurance, Pantoja Toribio couldn't afford to find out if she had a serious .

Beginning this year, Medi-Cal, California's Medicaid program, expanded to include immigrants lacking legal residency, timing that could have worked out perfectly for Pantoja Toribio, who has lived in the Bay Area of Brentwood for three years. But her application for Medi-Cal was quickly rejected: As a farmworker earning $16 an hour, her annual income of roughly $24,000 was too high to qualify for the program.

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California is the first state to expand to all qualifying adults regardless of immigration status, a move celebrated by health advocates and political leaders across the state. But many immigrants without permanent legal status, especially those who live in parts of California where the cost of living is highest, earn slightly too much money to qualify for Medi-Cal.

The state is footing the bill for the Medi-Cal expansion, but federal bars those it calls “undocumented” from receiving insurance subsidies or other benefits from the Affordable Care Act, leaving many employed but without viable health insurance options.

Now, the same health advocates who fought for the Medi-Cal expansion say the next step in achieving health equity is expanding Covered California, the state's ACA marketplace, to all immigrant adults by passing AB 4.

“There are people in this state who work and are the backbone of so many sectors of our and contribute their labor and even taxes … but they are locked out of our social safety net,” said Sarah Dar, policy director at the California Immigrant Policy Center, one of two sponsoring the bill, dubbed #Health4All.

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To qualify for Medi-Cal, an individual cannot earn more than 138% of the federal poverty level, which currently amounts to nearly $21,000 a year for a single person. A family of three would need to earn less than $35,632 a year.

For people above those thresholds, the Covered California marketplace offers various health plans, often with federal and state subsidies, yielding premiums as low as $10 a month. The hope is to create what advocates call a “mirror marketplace” on the Covered California website so that immigrants regardless of status can be offered the same health plans that would be subsidized only by the state.

Despite a Democratic supermajority in the legislature, the bill might struggle to pass, with the state facing a projected budget deficit for next year of anywhere from $38 billion to $73 billion. Gov. Gavin Newsom and legislative leaders announced a $17 billion package to start reducing the gap, but significant spending cuts appear inevitable.

It's not clear how much it would cost to extend Covered California to all immigrants, according to Assembly member Joaquin Arambula, the Fresno Democrat who introduced the bill.

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The immigrant policy center estimates that setting up the marketplace would cost at least $15 million. If the bill passes, sponsors would then need to secure funding for the subsidies, which could run into the billions of dollars annually.

“It is a tough time to be asking for new expenditures,” Dar said. “The mirror marketplace startup cost is a relatively very low number. So we're hopeful that it's still within the realm of possibility.”

Arambula said he's optimistic the state will continue to lead in improving access to for immigrants who lack legal residency.

“I believe we will continue to stand up, as we are working to make this a California for all,” he said.

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The bill passed the Assembly last July on a 64-9 vote and now awaits action by the Senate Appropriations Committee, Arambula's office said.

An estimated 520,000 people in California would qualify for a Covered California plan if not for their lack of legal status, according to the labor research center at the University of California-Berkeley. Pantoja Toribio, who emigrated alone from Mexico after leaving an abusive relationship, said she was lucky. She learned about alternative health care options when she made her weekly visit to a food pantry at Hijas del Campo, a Contra Costa County farmworker advocacy organization, where they told her she might qualify for a plan for low-income people through Kaiser Permanente.

Pantoja Toribio applied just before open enrollment closed at the end of January. Through the plan, she learned that the lump in her breast was not cancerous.

“God heard me,” she said. “Thank God.”

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This article was produced by KFF Health News, which publishes California Healthline, an editorially independent service of the California Health Care Foundation. 

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Title: California Floats Extending Health Insurance Subsidies to All Adult Immigrants
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Bird Flu Is Bad for Poultry and Dairy Cows. It’s Not a Dire Threat for Most of Us — Yet.

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Amy Maxmen
Fri, 03 May 2024 09:00:00 +0000

Headlines are flying after the Department of Agriculture confirmed that the H5N1 bird flu virus has infected dairy cows around the country. Tests have detected the virus among cattle in nine states, mainly in Texas and New Mexico, and most recently in Colorado, said Nirav Shah, principal deputy director at the Centers for Disease Control and Prevention, at a May 1 event held by the Council on Foreign Relations.

A menagerie of other animals have been infected by H5N1, and at least one person in Texas. But what scientists fear most is if the virus were to spread efficiently from person to person. That hasn't happened and might not. Shah said the CDC considers the H5N1 outbreak “a low risk to the general public at this time.”

Viruses evolve and outbreaks can shift quickly. “As with any major outbreak, this is moving at the speed of a bullet train,” Shah said. “What we'll be talking about is a snapshot of that fast-moving train.” What he means is that what's known about the H5N1 bird flu will undoubtedly change.

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With that in mind, KFF Health explains what you need to know now.

Q: Who gets the bird flu?

Mainly birds. Over the past few years, however, the H5N1 bird flu virus has increasingly jumped from birds into mammals around the world. The growing list of more than 50 species includes seals, goats, skunks, cats, and wild bush dogs at a zoo in the United Kingdom. At least 24,000 sea lions died in outbreaks of H5N1 bird flu in South America last year.

What makes the current outbreak in cattle unusual is that it's spreading rapidly from cow to cow, whereas the other cases — except for the sea lion infections — appear limited. Researchers know this because genetic sequences of the H5N1 viruses drawn from cattle this year were nearly identical to one another.

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The cattle outbreak is also concerning because the country has been caught off guard. Researchers examining the virus's genomes suggest it originally spilled over from birds into cows late last year in Texas, and has since spread among many more cows than have been tested. “Our analyses show this has been circulating in cows for four months or so, under our noses,” said Michael Worobey, an evolutionary biologist at the University of Arizona in Tucson.

Q: Is this the start of the next pandemic?

Not yet. But it's a thought worth considering because a bird flu pandemic would be a nightmare. More than half of people infected by older strains of H5N1 bird flu viruses from 2003 to 2016 died. Even if rates turn out to be less severe for the H5N1 strain currently circulating in cattle, repercussions could involve loads of sick people and hospitals too overwhelmed to handle other medical emergencies.

Although at least one person has been infected with H5N1 this year, the virus can't lead to a pandemic in its current state. To achieve that horrible status, a pathogen needs to sicken many people on multiple continents. And to do that, the H5N1 virus would need to infect a ton of people. That won't happen through occasional spillovers of the virus from farm animals into people. Rather, the virus must acquire mutations for it to spread from person to person, like the seasonal flu, as a respiratory infection transmitted largely through the as people cough, sneeze, and breathe. As we learned in the depths of covid-19, airborne viruses are hard to stop.

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That hasn't happened yet. However, H5N1 viruses now have plenty of chances to evolve as they replicate within thousands of cows. Like all viruses, they mutate as they replicate, and mutations that improve the virus's survival are passed to the next generation. And because cows are mammals, the viruses could be getting better at thriving within cells that are closer to ours than birds'.

The evolution of a pandemic-ready bird flu virus could be aided by a sort of superpower possessed by many viruses. Namely, they sometimes swap their genes with other strains in a called reassortment. In a study published in 2009, Worobey and other researchers traced the origin of the H1N1 “swine flu” pandemic to in which different viruses causing the swine flu, bird flu, and human flu mixed and their genes within pigs that they were simultaneously infecting. Pigs need not be involved this time around, Worobey warned.

Q: Will a pandemic start if a person drinks virus-contaminated milk?

Not yet. Cow's milk, as well as powdered milk and infant formula, sold in stores is considered safe because the law requires all milk sold commercially to be pasteurized. That process of heating milk at high temperatures kills bacteria, viruses, and other teeny organisms. Tests have identified fragments of H5N1 viruses in milk from grocery stores but confirm that the virus bits are dead and, therefore, harmless.

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Unpasteurized “raw” milk, however, has been shown to contain living H5N1 viruses, which is why the FDA and other authorities strongly advise people not to drink it. Doing so could cause a person to become seriously ill or worse. But even then, a pandemic is unlikely to be sparked because the virus — in its current form — does not spread efficiently from person to person, as the seasonal flu does.

Q: What should be done?

A lot! Because of a lack of surveillance, the U.S. Department of Agriculture and other agencies have the H5N1 bird flu to spread under the radar in cattle. To get a handle on the situation, the USDA recently ordered all lactating dairy cattle to be tested before farmers move them to other states, and the outcomes of the tests to be reported.

But just as restricting covid tests to international travelers in early 2020 allowed the coronavirus to spread undetected, testing only cows that move across state lines would miss plenty of cases.

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Such limited testing won't reveal how the virus is spreading among cattle — information desperately needed so farmers can stop it. A leading hypothesis is that viruses are being transferred from one cow to the next through the machines used to milk them.

To boost testing, Fred Gingrich, executive director of a nonprofit organization for farm veterinarians, the American Association of Bovine Practitioners, said the government should offer funds to cattle farmers who report cases so that they have an incentive to test. Barring that, he said, reporting just adds reputational damage atop financial loss.

“These outbreaks have a significant economic impact,” Gingrich said. “Farmers lose about 20% of their milk production in an outbreak because animals quit eating, produce less milk, and some of that milk is abnormal and then can't be sold.”

The government has made the H5N1 tests for farmers, Gingrich added, but they haven't budgeted money for veterinarians who must sample the cows, transport samples, and file paperwork. “Tests are the least expensive part,” he said.

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If testing on farms remains elusive, evolutionary virologists can still learn a lot by analyzing genomic sequences from H5N1 viruses sampled from cattle. The differences between sequences tell a story about where and when the current outbreak began, the path it travels, and whether the viruses are acquiring mutations that pose a threat to people. Yet this vital research has been hampered by the USDA's slow and incomplete posting of genetic data, Worobey said.

The government should also help poultry farmers prevent H5N1 outbreaks since those kill many birds and pose a constant threat of spillover, said Maurice Pitesky, an avian disease specialist at the University of California-Davis.

Waterfowl like ducks and geese are the usual sources of outbreaks on poultry farms, and researchers can detect their proximity using remote sensing and other technologies. By zeroing in on zones of potential spillover, farmers can target their attention. That can mean routine surveillance to detect early signs of infections in poultry, using water cannons to shoo away migrating flocks, relocating farm animals, or temporarily ushering them into barns. “We should be spending on prevention,” Pitesky said.

Q: OK it's not a pandemic, but what could happen to people who get this year's H5N1 bird flu?

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No one really knows. Only one person in Texas has been diagnosed with the disease this year, in April. This person worked closely with dairy cows, and had a mild case with an eye infection. The CDC found out about them because of its surveillance process. Clinics are supposed to alert state health departments when they diagnose farmworkers with the flu, using tests that detect influenza viruses, broadly. State health departments then confirm the test, and if it's positive, they send a person's sample to a CDC laboratory, where it is checked for the H5N1 virus, specifically. “Thus far we have received 23,” Shah said. “All but one of those was negative.”

State health department officials are also monitoring around 150 people, he said, who have spent time around cattle. They're checking in with these farmworkers via phone calls, text messages, or in-person visits to see if they develop symptoms. And if that happens, they'll be tested.

Another way to assess farmworkers would be to check their blood for antibodies against the H5N1 bird flu virus; a positive result would indicate they might have been unknowingly infected. But Shah said health officials are not yet doing this work.

“The fact that we're four months in and haven't done this isn't a good sign,” Worobey said. “I'm not super worried about a pandemic at the moment, but we should start acting like we don't want it to happen.”

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——————————
By: Amy Maxmen
Title: Bird Flu Is Bad for Poultry and Dairy Cows. It's Not a Dire Threat for Most of Us — Yet.
Sourced From: kffhealthnews.org/news/article/bird-flu-h5n1-risks-questions-answered/
Published Date: Fri, 03 May 2024 09:00:00 +0000

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