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Epidemic: The Goddess of Smallpox

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Tue, 18 Jul 2023 09:00:00 +0000

In the mid-’60s, the national campaign to eradicate smallpox in India was underway, but the virus was still widespread throughout the country. At the time, Dinesh Bhadani was a small boy living in Gaya, a city in the state of Bihar.

In his community many people believed smallpox was divine, sent by the Hindu goddess Shitala Mata. In Bihar people had misgivings about accepting the vaccine because, Bhadani says, they did not want to interfere with the will of the goddess. Others hesitated because making the vaccine required using cows, which are sacred in the Hindu religion. Still others hesitated because the procedure — which involved twirling a barbed disk into a patient’s skin — hurt.  

But when Bhadani was 10 years old, he saw the body of a school friend who had died of smallpox. The body was covered in blistering pustules, the skin not visible at all. 

Soon after, when eradication workers came to town, young Bhadani remembered his friend, gritted his teeth, and agreed to get the painful vaccine.  

Variola major smallpox was deadly and highly contagious. Infected people often died within two weeks — many of them young children. Those who survived could be left severely scarred, infertile, or blind. 

Episode 1 of “Eradicating Smallpox” explores the layered cultural landscape that eradication workers navigated as they worked to eliminate the virus. Success required technological innovations, cultural awareness, and a shared dream that a huge public health triumph was possible.  

To close the episode, Céline Gounder wonders how the U.S. might tap into similar “moral imagination” to prepare for the next public health crisis.

The Host

Céline Gounder
Senior fellow & editor-at-large for public health, KFF Health News


@celinegounder


Read Céline’s stories

Céline is senior fellow and editor-at-large for public health with KFF Health News. She is an infectious diseases physician and epidemiologist. She was an assistant commissioner of health in New York City. Between 1998 and 2012, she studied tuberculosis and HIV in South Africa, Lesotho, Malawi, Ethiopia, and Brazil. Gounder also served on the Biden-Harris Transition COVID-19 Advisory Board. 

In Conversation with Céline Gounder:

adrienne maree brown
Social justice organizer and science fiction author


@adriennemaree

Voices from the Episode:

Rajendra Prasad Dhyani
Temple priest at the Shitala Mata Temple in New Delhi

Dinesh Bhadani
Retired Indian Railways station manager living in New Delhi

Priyanka Bhadani
Journalist living in Delhi

Click here to open the transcript

Transcript: The Goddess of Smallpox

Podcast Transcript Epidemic: “Eradicating Smallpox” Season 2, Episode 1: The Goddess of Smallpox Air date: July 18, 2023 

Editor’s note: If you are able, we encourage you to listen to the audio of “Epidemic,” which includes emotion and emphasis not found in the transcript. This transcript, generated using transcription software, has been edited for style and clarity. Please use the transcript as a tool but check the corresponding audio before quoting the podcast. 

TRANSCRIPT 

[street noises] 

Céline Gounder: 

It’s a hot, humid day in New Delhi. Little shops line the street — food stalls, a kite store, and a small, neighborhood temple nestled among them. And just outside the orange temple gate, a pile of flip-flops and sandals. 

[ringing bells and people murmuring] 

Céline Gounder: 

The temple bells are calling. So, I take off my shoes and head inside. The walls are covered in floral tiles, and all around me, people pray barefoot in the glow of the fluorescent lights. There are offerings of flowers and sweets in front of the statue of the elephant-headed Hindu god, Ganesh. And nearby a less familiar figure: the goddess Shitala Mata. 

She’s riding a donkey, with a pitcher of water in one hand and a broom in the other. She wears a fan on her head like a crown. There’s a garland of marigolds strung around her neck. Shitala Mata: the goddess of smallpox. 

[music change] 

Céline Gounder: 

I’m Dr. Céline Gounder. I’m an epidemiologist and infectious disease specialist. 

[music change] 

Céline Gounder: 

My dad grew up in a rural part of southern India, and his childhood there was shaped by relative poverty. Dad was the first person in his village to make it past the fifth grade, smart and fortunate enough to make it to a prestigious university. He came to the United States for grad school and became an engineer. 

But he told us stories of the big divides back home in India — in health, in education, in opportunity. Those stories shaped me. Those inequities are a big part of why I chose a career in public health. I became a physician, and over the years worked on infectious disease outbreaks all over the world — tuberculosis, HIV, Ebola, and of course, most recently, covid. 

Watching the United States respond to the pandemic got me thinking back to another disease that gripped the world … smallpox. In the 20th century alone, smallpox killed over 300 million people. But in one of the greatest success stories in science, medicine, and public health history, we conquered smallpox. Gone everywhere. 

In the summer of 2022, I traveled to India and Bangladesh to seek out that history. This podcast is the story of the final days of smallpox eradication in South Asia. But before we get to that, I want to share what I’m beginning to understand about the role smallpox played in people’s lives. 

[murmuring of people] 

Céline Gounder: 

That’s why I’m here at this temple. Smallpox was seen as part of nature, elemental; something so old, so ingrained in daily life, that it had a place among the gods. 

Rajendra Prasad Dhyani: 

[Rajendra Prasad Dhyani speaking in Hindi, overlaid with voice actor’s English translation] 

I am Rajendra Prasad Dhyani and I serve at the Shitala Mata Temple, Madangir, C First Block. You want to know about Shitala Mata, don’t you? 

Céline Gounder: 

There are lots of origin stories for Shitala Mata. 

[music fades in] 

Céline Gounder: 

The story the temple priest Rajendra told me starts like this: One day in a village, people were washing clothes. A goddess was wandering the town disguised as an old woman when someone threw scalding water on her. 

Rajendra Prasad Dhyani: 

[Dhyani speaking in Hindi, overlaid with voice actor’s English translation] 

She got blisters all over her body. She got on a donkey and started roaming around the village, screaming in pain. 

Céline Gounder: 

One of the villagers poured cold water on the old woman. She was magically healed and revealed her true form as the goddess Shitala Mata. 

Rajendra Prasad Dhyani: 

[Dhyani speaking in Hindi, overlaid with voice actor’s English translation] 

She said, “Anyone who suffers from a blistering disease, be it chickenpox or smallpox, if you give them food cooked the night before as my blessing, they will be cured.” 

Céline Gounder: 

Shitala Mata both gives smallpox and cures it. Her disease can be seen as a curse, a terrible illness, or as a blessing — an opportunity to rest and reflect. 

Rajendra Prasad Dhyani: 

[Dhyani speaking in Hindi, overlayed with voice actor’s English translation] 

She blesses people. She blesses them with peace of mind and calm. Sheetal means cool, so she soothes the mind and bestows devotees with peace of mind. She is the goddess of tranquility. 

Céline Gounder: 

What Shitala Mata represents in Indian culture is complex. 

[music ends] 

Céline Gounder: 

And defeating smallpox required appreciating and respecting that complexity. It also took medical advances, fresh ideas about epidemiology, unlikely partnerships, and the unwavering dedication of hundreds of thousands of health care workers. We have firsthand accounts from health leaders who were there, some who have never been heard outside of India and Bangladesh. 

I’m Dr. Céline Gounder and this is “Epidemic.” 

[music interlude] 

Céline Gounder: 

Today, it’s hard to even imagine what it was like to live in a world with smallpox, where, in the course of your daily life — riding a train, sitting in a classroom, going to work — you could catch a virus so deadly that it killed about 1 in 3 people. That was the death toll before smallpox vaccination became widespread: 1 in 3. And if you did survive, the scars left behind might haunt you for the rest of your life. I met up with someone who lived in those “before times,” when eradication was still a far-off dream. 

Dinesh Bhadani: 

[Bhadani speaking in a mix of Hindi and English, before the voice actor’s English translation begins] 

My name is Dinesh Kumar Bhadani. I am a retired station manager in Indian Railways. Now, my age is 68 years. 

Céline Gounder: 

I met up with Dinesh Bhadani and his daughter Priyanka at their apartment in New Delhi. As we drank sweet pomegranate juice, Dinesh told me about growing up in the 1960s in Gaya, a small holy city in the eastern state of Bihar. Pilgrims from around the world traveled there to visit the temples. And in the Bihar of Dinesh’s youth, his hometown was one of the last hot spots for smallpox. Dinesh says diseases like smallpox, measles, mumps — they weren’t just a matter of bad luck. To many, they were the will of the gods. 

Dinesh Bhadani: 

[Bhadani speaking in a mix of Hindi and English, before the voice actor’s English translation begins] 

People used to call all of these as some type of wrath from God. People did not consider them illness; people used to say they were divine wraths.  

Céline Gounder:  

Dinesh’s family home was enormous. It was hundreds of years old. Sometimes more than 50 people cooked together, ate together, and — with little ability to isolate — they got sick together. Especially during a smallpox outbreak. 

[music change] 

Voice actor speaking in English: 

There was an atmosphere of fear because the number of deaths had increased. 

Dinesh Bhadani: 

[Bhadani speaking in a mix of Hindi and English, before the voice actor’s English translation begins] 

At that time, many people died, especially teenagers. A lot of young people died. 

Céline Gounder: 

Smallpox could spread quickly, traveling from person to person from a cough or a sneeze; through everyday family contact with contaminated bedsheets or towels. 

The first signs of infection were usually a high fever, headache, and sometimes vomiting and diarrhea. Then pustules filled with fluid appeared on the body — both inside and out. It was searingly painful. People often died within two weeks — many of them young children. Those who survived could be left severely scarred, infertile, or blind. 

A smallpox vaccine has been around since the 18th century, but that protection didn’t reach enough people, so smallpox thrived and continued to kill millions around the world. 

Dinesh says he remembers that, in Bihar, people had real misgivings about getting the vaccine. Some didn’t want to interfere with the will of the goddess Shitala Mata. Other people hesitated because of the vaccine itself. And the procedure could hurt. 

Dinesh Bhadani: 

[Bhadani speaking in a mix of Hindi and English, before the voice actor’s English translation begins] 

They were afraid that it was painful. That’s why people would run away, like, “We will not take it.” 

Céline Gounder:  

Smallpox vaccinations in the 1960s really did hurt more than the quick shots we get today. Health workers dipped a rotating barbed disc into the vaccine solution and then twirled it into a patient’s skin. The vaccine entered the body through these open wounds. It was a brutal procedure. 

Dinesh Bhadani:  

[Bhadani speaking in a mix of Hindi and English, before the voice actor’s English translation begins] 

It used to be very painful. It took more than one week to heal. 

Céline Gounder:  

But as more and more people fell ill, the calculus of fear began to change. For Dinesh, it happened when he was 10. A classmate died of smallpox. It was the mid-1960s. 

Dinesh Bhadani: 

[Bhadani speaking in Hindi] 

He was a very handsome boy. He was the most good-looking boy in our group. 

Céline Gounder: 

Dinesh was curious about what happened to his friend, so he went to see the body. 

Dinesh Bhadani:  

[Bhadani speaking in a mix of Hindi and English, before the voice actor’s English translation begins] 

The skin was not visible at all. It looked like a person who got burned, whose entire skin had been burnt. There were blisters all over his body, and a foul smell was coming from his body. 

Céline Gounder: 

Dinesh was so terrified that he couldn’t sleep for three days. 

Dinesh Bhadani: 

[Bhadani speaking in a mix of Hindi and English, before the voice actor’s English translation begins] 

The fear that it created, after seeing him, after witnessing his death — fear spread among people, like, “Let’s take the vaccine so that we don’t have to face these kinds of deaths.” 

Céline Gounder: 

There was a vaccine camp at his school, and Dinesh lined up for his dose. Then health workers went house to house, knocking on doors to find any children they’d missed. In the end, Dinesh says, every student at his school was vaccinated. And that feeling of fear that gripped the community began to fade. School by school and town by town, health workers repeated this painstaking work across the state of Bihar. 

[music fades in] 

Céline Gounder: 

Decades after smallpox was eradicated, it was hard for people who had survived the disease to really leave it behind. 

[music fades away] 

Céline Gounder: 

Dinesh’s daughter Priyanka Bhadani says that when she was maybe 10 or 12 years old, she started noticing how the adults around her reacted to lingering smallpox scars. It was the 1990s by then. 

Priyanka Bhadani:  

I realized that a lot of people were not welcome in the house — a lot of people with those marks that smallpox left on their bodies. So, there’s this one uncle, who couldn’t get married till the time he was 45, 46, because he had these scars. 

Céline Gounder:  

Survivors like her uncle were isolated, sometimes cut off from society. Priyanka remembers a local businessman who experienced the stigma that often followed someone who’d had smallpox. 

Priyanka Bhadani: 

He loved one girl in the community; he wanted to get married to that girl. The girl was also in love with him, but then he got smallpox and the family refused, and his entire life was spent in proving himself to be worthy of the girl. So, he established a business, which was huge, for people to take notice of him. 

[music begins] 

Céline Gounder:  

Traveling around New Delhi and Pune, I met several older people with pockmarks on their faces, but this is the last generation with those scars. 

In 1980, the World Health Organization declared that smallpox was eradicated — wiped from the planet. It’s one of the greatest triumphs of science, medicine, and public health. But today, roughly 40 years after the disease was defeated, hardly any of my colleagues in public health have any living memory of smallpox, or the Herculean effort it took to eradicate it. 

We’re going back in time to consider that history. If we are to overcome current-day crises — from covid to climate change — perhaps there’s something we can learn from those bold leaders of the past. Generations before us imagined a world without smallpox when that goal must have felt like science fiction. 

adrienne maree brown: In science fiction, there’s questions that generally guide how we create. So, it’s “What if?” Like … “What if cars could fly? What if everyone had health care? What if?” And “If this goes on …” Where it’s like, “If this goes on the way it is, if nothing was to change, can we live with this?” 

Céline Gounder: 

Can we live with this? 

[music begins] 

Céline Gounder: 

What would it take to imagine a world with fewer covid deaths? When we come back, we’ll speak with social justice organizer and author adrienne maree brown. She’ll tell us what science fiction can teach us about dreaming up the next great public health triumph. 

[music fades away] 

Céline Gounder:  

Our reporting on what it took to eradicate smallpox has me wishing that our country had a bit more moral imagination as it faces covid and braces for the next public health crisis. Moral imagination is the idea that to solve big problems you have to think big; dream big. Then, you have to fuel those dreams with down-to-earth creativity, empathy, and commitment. Joining us is social justice organizer and science fiction author adrienne maree brown. 

adrienne maree brown: It’s really nice to be here and I’m grateful you’re approaching this topic, so let’s see what we can do. 

Céline Gounder: 

adrienne, whether you’re writing science fiction or organizing for social change, a lot of your work is about imagination. Over the course of my career, and I’m sure you’ve run into this too, of people saying some version of, “This is the way the real world is, or this is just the way it is.” 

adrienne maree brown: 

Mm-hmm. 

Céline Gounder: 

And they tell you that some changes aren’t possible, that some ways of doing things just don’t make sense. Where do you find the inspiration to think up, to dream up the worlds that are so wildly different from our present reality? 

adrienne maree brown: Saying that stuff is just the way it is, that’s one of the greatest ways that those who currently benefit from the way things are keep us from even imagining that things could be different. For centuries in this country, we were told that slavery was just the way things are, and that it could never be any different. And yet there are people in those systems who said, “This isn’t right. This isn’t fair. Something else is actually possible.” 

So a lot of the work of radical imagination, for me, is the work of saying, “Can we imagine a world in which our lives actually matter, and we structure our society around the care that we can give to each other, the care that we need?” 

Céline Gounder:  

And as part of this idea of radical imagination, I know that you really draw on science fiction as a way of helping us test out solutions to real problems. Is there an example from your fiction, maybe your new book, “Grievers,” of fiction helping provide solutions to real problems? 

adrienne maree brown: “Grievers” is the first in a trilogy of books, and in the beginning, the first novella, we have a plague that rolls out through the city of Detroit and stops people from being able to function in any way, and they’re really overcome with what appears to be debilitating grief. And when covid happened, I felt what I had been writing about in the book was in practice. And so, what is emerging in these books is how do we actually come up with plans for surviving changing conditions together? 

Céline Gounder: 

Well, one of the frustrations I’ve had as a doctor and epidemiologist working in the pandemic is that our leaders seem to think that our current covid death rates are acceptable, even though at the current levels we’d be looking at about a hundred thousand deaths per year. How can we influence change when many people in power aren’t willing to spend more money to save more lives? Especially when it comes to marginalized communities that have been hit hardest by covid. 

adrienne maree brown: Mmmm. I think what’s very difficult, and I think what you’ve been pointing to, is we’re in a situation right now where our economic structure works directly against every other aspect of our survival. I lost people to covid. I’m not OK with it; I don’t accept it. And it’s so heartbreaking because it’s like, your government could have protected you from this; your job could have protected you from this. Like there’s so many front lines that could be held that would protect our people. 

And I keep coming back to disability justice and disabled communities, ’cause that’s where I see some of the most interesting, hard work happening around this now. ’Cause they’re like, “It’s great that y’all are all trying to rush back into acting all normal. We literally can’t do that. We’re not willing to pay the cost.” And so, watching communities start to figure out how to navigate that with each other: How are disabled communities getting together? Why are we so willing to let so many people die unnecessarily rather than making the necessary pivots inside of our economic models and inside of our approach to community with each other? 

Céline Gounder:  

Early in the pandemic, it did feel like people were re-imagining things to some degree, like remote learning, you know, or how do you expand access to broadband or access to health care coverage or paid sick and family medical leave for everybody. But now we’re seeing fewer and fewer resources being allocated toward saving lives. People are feeling really beaten down in public health right now. We’re really at an all-time low in terms of morale. Where do you turn to for reminders that another world is possible, that there is hope? 

adrienne maree brown: What I have learned is that people cannot jump straight from crisis and despair to like [singing] “a whole new world,” right? You just — that’s not a leap you make. 

Each of us is carrying this small piece of this collective grief. These are not numbers. They’re people. They’re mothers and fathers, grandparents, children. They’re people that we loved. And we want to live a life and structure a world that honors what we’ve lost as well as what we’re dreaming of. What does that grief make us want to fight for? What does it make us want to dream up? What does it make us want to open room for? 

Céline Gounder: 

adrienne, it’s interesting. We’re addressing some of the same issues, but with very different tools. And I’m curious, do you have any final questions for me? 

adrienne maree brown: I think my question for you would be, what do you feel like are the most exciting innovations that you wish people understood and knew were in development around this? 

Celine Gounder: Oh, interesting. I think it’s not necessarily new innovation. 

adrienne maree brown: Mm-hmm. 

Céline Gounder: 

Sometimes it’s stuff that we already have and we just haven’t scaled up and used. It’s not enough to invent something new. You have to take it to scale. 

adrienne maree brown: Yes. 

Céline Gounder:  

And so, whether that is cleaning the air or paid sick and family medical leave, you know, as many as 15, 20 million people might be losing their Medicaid. Could we imagine everyone having health care or access to health care? What would it take to get there? Um, I think that’s where I’d like to see innovation, is actually in our ability to imagine that. 

adrienne maree brown: I love that. These are things that we actually know work, and it’s how do we get people to be in the practice of implementation. So thank you for sharing on that. 

Céline Gounder:  

Thank you, adrienne. I’ve really enjoyed our conversation. 

adrienne maree brown: I’m really glad we got to speak. Thank you, Céline. 

[music begins] 

Céline Gounder:  

That was adrienne maree brown, author of the “Grievers” novels, a speculative fiction series about survival and hope in a pandemic-stricken Detroit. 

“Eradicating Smallpox,” our latest season of “Epidemic,” is a co-production of KFF Health News and Just Human Productions. 

Additional support provided by the Sloan Foundation. 

This episode was produced by Zach Dyer, Jenny Gold, Taylor Cook, and me. 

Taunya English is our managing editor. 

Oona Tempest is our graphics and photo editor. 

The show was engineered by Justin Gerrish. 

Voice acting by Ashish Mukerjee and Jatinder Singh Taneja. 

Music in this episode is from the Blue Dot Sessions and Soundstripe. We’re powered and distributed by Simplecast. 

If you enjoyed the show, please tell a friend. And leave us a review on Apple Podcasts. It helps more people find the show. 

Follow KFF Health News on Twitter, Instagram, and TikTok. And find me on Twitter @celinegounder. On our socials there’s more about the ideas we’re exploring on the podcasts. 

And subscribe to our newsletters at kffhealthnews.org so you’ll never miss what’s new and important in American health care, health policy, and public health news. 

I’m Dr. Céline Gounder. Thanks for listening to “Epidemic.” 

[music fades to silence] 

Credits

Taunya English
Managing editor


@TaunyaEnglish

Taunya is senior editor for broadcast innovation with KFF Health News, where she leads enterprise audio projects.

Zach Dyer
Senior producer


@zkdyer

Zach is senior producer for audio with KFF Health News where he supervises all levels of podcast production from researching story pitches, interviewing guests to the final mix.

Taylor Cook
Associate producer


@taylormcook7

Taylor is associate audio producer for Season 2 of Epidemic. She researches, writes, and fact-checks scripts for the podcast.

Oona Tempest
Photo editing, design, logo art


@oonatempest

Oona is a digital producer and illustrator with KFF Health News. She researched, sourced, and curated the images for the season.

Additional Newsroom Support

Lydia Zuraw, digital producer Tarena Lofton, audience engagement producer Hannah Norman, visual producer and visual reporter Simone Popperl, broadcast editor Chaseedaw Giles, social media manager Mary Agnes Carey, partnerships editor Damon Darlin, executive editor Terry Byrne, copy chief Chris Lee, senior communications officer 

Epidemicis a co-production of KFF Health News and Just Human Productions.

To hear other KFF Health News podcasts, click here. Subscribe to “Epidemic” on Apple Podcasts, Spotify, Google, Pocket Casts, or wherever you listen to podcasts.

Title: Epidemic: The Goddess of Smallpox
Sourced From: kffhealthnews.org/news/podcast/epidemic-season-2-episode-1-goddess-of-smallpox/
Published Date: Tue, 18 Jul 2023 09:00:00 +0000

Kaiser Health News

States Brace for Reversal of Obamacare Coverage Gains Under Trump’s Budget Bill

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kffhealthnews.org – Julie Appleby, KFF Health News – 2025-07-03 14:43:00


The tax and spending bill pushed by President Trump includes provisions that shorten ACA enrollment periods, increase paperwork, and raise premiums, threatening coverage gains from the Affordable Care Act. Particularly impacted are the 19 states running their own ACA exchanges, where automatic reenrollment would end, potentially causing 30-50% enrollment losses. Combined with the likely expiration of enhanced pandemic premium subsidies, premiums could rise 75% on average next year. Supporters cite fraud reduction, but many analysts warn these changes could push 4-6 million people out of Marketplace plans, increase the uninsured rate, and leave insurers with smaller, sicker pools and higher prices.


Shorter enrollment periods. More paperwork. Higher premiums. The sweeping tax and spending bill pushed by President Donald Trump includes provisions that would not only reshape people’s experience with the Affordable Care Act but, according to some policy analysts, also sharply undermine the gains in health insurance coverage associated with it.

The moves affect consumers and have particular resonance for the 19 states (plus Washington, D.C.) that run their own ACA exchanges.

Many of those states fear that the additional red tape — especially requirements that would end automatic reenrollment — would have an outsize impact on their policyholders. That’s because a greater percentage of people in those states use those rollovers versus shopping around each year, which is more commonly done by people in states that use the federal healthcare.gov marketplace.

“The federal marketplace always had a message of, ‘Come back in and shop,’ while the state-based markets, on average, have a message of, ‘Hey, here’s what you’re going to have next year, here’s what it will cost; if you like it, you don’t have to do anything,’” said Ellen Montz, who oversaw the federal ACA marketplace under the Biden administration as deputy administrator and director at the Center for Consumer Information and Insurance Oversight. She is now a managing director with the Manatt Health consulting group.

Millions — perhaps up to half of enrollees in some states — may lose or drop coverage as a result of that and other changes in the legislation combined with a new rule from the Trump administration and the likely expiration at year’s end of enhanced premium subsidies put in place during the covid-19 pandemic. Without an extension of those subsidies, which have been an important driver of Obamacare enrollment in recent years, premiums are expected to rise 75% on average next year. That’s starting to happen already, based on some early state rate requests for next year, which are hitting double digits.

“We estimate a minimum 30% enrollment loss, and, in the worst-case scenario, a 50% loss,” said Devon Trolley, executive director of Pennie, the ACA marketplace in Pennsylvania, which had 496,661 enrollees this year, a record.

Drops of that magnitude nationally, coupled with the expected loss of Medicaid coverage for millions more people under the legislation Trump calls the “One Big Beautiful Bill,” could undo inroads made in the nation’s uninsured rate, which dropped by about half from the time most of the ACA’s provisions went into effect in 2014, when it hovered around 14% to 15% of the population, to just over 8%, according to the most recent data.

Premiums would rise along with the uninsured rate, because older or sicker policyholders are more likely to try to jump enrollment hurdles, while those who rarely use coverage — and are thus less expensive — would not.

After a dramatic all-night session, House Republicans passed the bill, meeting the president’s July 4 deadline. Trump is expected to sign the measure on Independence Day. It would increase the federal deficit by trillions of dollars and cut spending on a variety of programs, including Medicaid and nutrition assistance, to partly offset the cost of extending tax cuts put in place during the first Trump administration.

The administration and its supporters say the GOP-backed changes to the ACA are needed to combat fraud. Democrats and ACA supporters see this effort as the latest in a long history of Republican efforts to weaken or repeal Obamacare. Among other things, the legislation would end several changes put in place by the Biden administration that were credited with making it easier to sign up, such as lengthening the annual open enrollment period and launching a special program for very low-income people that essentially allows them to sign up year-round.

In addition, automatic reenrollment, used by more than 10 million people for 2025 ACA coverage, would end in the 2028 sign-up season. Instead, consumers would have to update their information, starting in August each year, before the close of open enrollment, which would end Dec. 15, a month earlier than currently.

That’s a key change to combat rising enrollment fraud, said Brian Blase, president of the conservative Paragon Health Institute, because it gets at what he calls the Biden era’s “lax verification requirements.”

He blames automatic reenrollment, coupled with the availability of zero-premium plans for people with lower incomes that qualify them for large subsidies, for a sharp uptick in complaints from insurers, consumers, and brokers about fraudulent enrollments in 2023 and 2024. Those complaints centered on consumers’ being enrolled in an ACA plan, or switched from one to another, without authorization, often by commission-seeking brokers.

In testimony to Congress on June 25, Blase wrote that “this simple step will close a massive loophole and significantly reduce improper enrollment and spending.”

States that run their own marketplaces, however, saw few, if any, such problems, which were confined mainly to the 31 states using the federal healthcare.gov.

The state-run marketplaces credit their additional security measures and tighter control over broker access than healthcare.gov for the relative lack of problems.

“If you look at California and the other states that have expanded their Medicaid programs, you don’t see that kind of fraud problem,” said Jessica Altman, executive director of Covered California, the state’s Obamacare marketplace. “I don’t have a single case of a consumer calling Covered California saying, ‘I was enrolled without consent.’”

Such rollovers are common with other forms of health insurance, such as job-based coverage.

“By requiring everyone to come back in and provide additional information, and the fact that they can’t get a tax credit until they take this step, it is essentially making marketplace coverage the most difficult coverage to enroll in,” said Trolley at Pennie, 65% of whose policyholders were automatically reenrolled this year, according to KFF data. KFF is a health information nonprofit that includes KFF Health News.

Federal data shows about 22% of federal sign-ups in 2024 were automatic-reenrollments, versus 58% in state-based plans. Besides Pennsylvania, the states that saw such sign-ups for more than 60% of enrollees include California, New York, Georgia, New Jersey, and Virginia, according to KFF.

States do check income and other eligibility information for all enrollees — including those being automatically renewed, those signing up for the first time, and those enrolling outside the normal open enrollment period because they’ve experienced a loss of coverage or other life event or meet the rules for the low-income enrollment period.

“We have access to many data sources on the back end that we ping, to make sure nothing has changed. Most people sail through and are able to stay covered without taking any proactive step,” Altman said.

If flagged for mismatched data, applicants are asked for additional information. Under current law, “we have 90 days for them to have a tax credit while they submit paperwork,” Altman said.

That would change under the tax and spending plan before Congress, ending presumptive eligibility while a person submits the information.

A white paper written for Capital Policy Analytics, a Washington-based consultancy that specializes in economic analysis, concluded there appears to be little upside to the changes.

While “tighter verification can curb improper enrollments,” the additional paperwork, along with the expiration of higher premiums from the enhanced tax subsidies, “would push four to six million eligible people out of Marketplace plans, trading limited fraud savings for a surge in uninsurance,” wrote free market economists Ike Brannon and Anthony LoSasso.

“Insurers would be left with a smaller, sicker risk pool and heightened pricing uncertainty, making further premium increases and selective market exits [by insurers] likely,” they wrote.

KFF Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about KFF.

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The post States Brace for Reversal of Obamacare Coverage Gains Under Trump’s Budget Bill appeared first on kffhealthnews.org



Note: The following A.I. based commentary is not part of the original article, reproduced above, but is offered in the hopes that it will promote greater media literacy and critical thinking, by making any potential bias more visible to the reader –Staff Editor.

Political Bias Rating: Center-Left

This content presents a critique of Republican-led changes to the Affordable Care Act, emphasizing potential negative impacts such as increased premiums, reduced enrollment, and the erosion of coverage gains made under the ACA. It highlights the perspective of policy analysts and state officials who express concern over these measures, while also presenting conservative viewpoints, particularly those focusing on fraud reduction. Overall, the tone and framing lean toward protecting the ACA and its expansions, which traditionally aligns with Center-Left media analysis.

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Kaiser Health News

Dual Threats From Trump and GOP Imperil Nursing Homes and Their Foreign-Born Workers

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kffhealthnews.org – Jordan Rau, KFF Health News – 2025-06-26 04:00:00


In Alexandria, Virginia, Rev. Donald Goodness, 92, is cared for by many foreign-born nurses like Jackline Conteh from Sierra Leone, who vigilantly manages his celiac disease needs. The long-term care industry relies heavily on immigrants, with 28% of direct care workers being foreign-born. However, President Trump’s 2024 immigration crackdown, including rescinded protections and revoked work permits for refugees, threatens staffing levels. Coupled with proposed Medicaid spending cuts, nursing homes face worsening shortages and quality challenges. Many immigrant caregivers fear deportation, risking a crisis in elder care as demand rises with America’s aging population.


In a top-rated nursing home in Alexandria, Virginia, the Rev. Donald Goodness is cared for by nurses and aides from various parts of Africa. One of them, Jackline Conteh, a naturalized citizen and nurse assistant from Sierra Leone, bathes and helps dress him most days and vigilantly intercepts any meal headed his way that contains gluten, as Goodness has celiac disease.

“We are full of people who come from other countries,” Goodness, 92, said about Goodwin House Alexandria’s staff. Without them, the retired Episcopal priest said, “I would be, and my building would be, desolate.”

The long-term health care industry is facing a double whammy from President Donald Trump’s crackdown on immigrants and the GOP’s proposals to reduce Medicaid spending. The industry is highly dependent on foreign workers: More than 800,000 immigrants and naturalized citizens comprise 28% of direct care employees at home care agencies, nursing homes, assisted living facilities, and other long-term care companies.

But in January, the Trump administration rescinded former President Joe Biden’s 2021 policy that protected health care facilities from Immigration and Customs Enforcement raids. The administration’s broad immigration crackdown threatens to drastically reduce the number of current and future workers for the industry. “People may be here on a green card, and they are afraid ICE is going to show up,” said Katie Smith Sloan, president of LeadingAge, an association of nonprofits that care for older adults.

Existing staffing shortages and quality-of-care problems would be compounded by other policies pushed by Trump and the Republican-led Congress, according to nursing home officials, resident advocates, and academic experts. Federal spending cuts under negotiation may strip nursing homes of some of their largest revenue sources by limiting ways states leverage Medicaid money and making it harder for new nursing home residents to retroactively qualify for Medicaid. Care for 6 in 10 residents is paid for by Medicaid, the state-federal health program for poor or disabled Americans.

“We are facing the collision of two policies here that could further erode staffing in nursing homes and present health outcome challenges,” said Eric Roberts, an associate professor of internal medicine at the University of Pennsylvania.

The industry hasn’t recovered from covid-19, which killed more than 200,000 long-term care facility residents and workers and led to massive staff attrition and turnover. Nursing homes have struggled to replace licensed nurses, who can find better-paying jobs at hospitals and doctors’ offices, as well as nursing assistants, who can earn more working at big-box stores or fast-food joints. Quality issues that preceded the pandemic have expanded: The percentage of nursing homes that federal health inspectors cited for putting residents in jeopardy of immediate harm or death has risen alarmingly from 17% in 2015 to 28% in 2024.

In addition to seeking to reduce Medicaid spending, congressional Republicans have proposed shelving the biggest nursing home reform in decades: a Biden-era rule mandating minimum staffing levels that would require most of the nation’s nearly 15,000 nursing homes to hire more workers.

The long-term care industry expects demand for direct care workers to burgeon with an influx of aging baby boomers needing professional care. The Census Bureau has projected the number of people 65 and older would grow from 63 million this year to 82 million in 2050.

In an email, Vianca Rodriguez Feliciano, a spokesperson for the Department of Health and Human Services, said the agency “is committed to supporting a strong, stable long-term care workforce” and “continues to work with states and providers to ensure quality care for older adults and individuals with disabilities.” In a separate email, Tricia McLaughlin, a Department of Homeland Security spokesperson, said foreigners wanting to work as caregivers “need to do that by coming here the legal way” but did not address the effect on the long-term care workforce of deportations of classes of authorized immigrants.

Goodwin Living, a faith-based nonprofit, runs three retirement communities in northern Virginia for people who live independently, need a little assistance each day, have memory issues, or require the availability of around-the-clock nurses. It also operates a retirement community in Washington, D.C. Medicare rates Goodwin House Alexandria as one of the best-staffed nursing homes in the country. Forty percent of the organization’s 1,450 employees are foreign-born and are either seeking citizenship or are already naturalized, according to Lindsay Hutter, a Goodwin spokesperson.

“As an employer, we see they stay on with us, they have longer tenure, they are more committed to the organization,” said Rob Liebreich, Goodwin’s president and CEO.

Jackline Conteh spent much of her youth shuttling between Sierra Leone, Liberia, and Ghana to avoid wars and tribal conflicts. Her mother was killed by a stray bullet in her home country of Liberia, Conteh said. “She was sitting outside,” Conteh, 56, recalled in an interview.

Conteh was working as a nurse in a hospital in Sierra Leone in 2009 when she learned of a lottery for visas to come to the United States. She won, though she couldn’t afford to bring her husband and two children along at the time. After she got a nursing assistant certification, Goodwin hired her in 2012.

Conteh said taking care of elders is embedded in the culture of African families. When she was 9, she helped feed and dress her grandmother, a job that rotated among her and her sisters. She washed her father when he was dying of prostate cancer. Her husband joined her in the United States in 2017; she cares for him because he has heart failure.

“Nearly every one of us from Africa, we know how to care for older adults,” she said.

Her daughter is now in the United States, while her son is still in Africa. Conteh said she sends money to him, her mother-in-law, and one of her sisters.

In the nursing home where Goodness and 89 other residents live, Conteh helps with daily tasks like dressing and eating, checks residents’ skin for signs of swelling or sores, and tries to help them avoid falling or getting disoriented. Of 102 employees in the building, broken up into eight residential wings called “small houses” and a wing for memory care, at least 72 were born abroad, Hutter said.

Donald Goodness grew up in Rochester, New York, and spent 25 years as rector of The Church of the Ascension in New York City, retiring in 1997. He and his late wife moved to Alexandria to be closer to their daughter, and in 2011 they moved into independent living at the Goodwin House. In 2023 he moved into one of the skilled nursing small houses, where Conteh started caring for him.

“I have a bad leg and I can’t stand on it very much, or I’d fall over,” he said. “She’s in there at 7:30 in the morning, and she helps me bathe.” Goodness said Conteh is exacting about cleanliness and will tell the housekeepers if his room is not kept properly.

Conteh said Goodness was withdrawn when he first arrived. “He don’t want to come out, he want to eat in his room,” she said. “He don’t want to be with the other people in the dining room, so I start making friends with him.”

She showed him a photo of Sierra Leone on her phone and told him of the weather there. He told her about his work at the church and how his wife did laundry for the choir. The breakthrough, she said, came one day when he agreed to lunch with her in the dining room. Long out of his shell, Goodness now sits on the community’s resident council and enjoys distributing the mail to other residents on his floor.

“The people that work in my building become so important to us,” Goodness said.

While Trump’s 2024 election campaign focused on foreigners here without authorization, his administration has broadened to target those legally here, including refugees who fled countries beset by wars or natural disasters. This month, the Department of Homeland Security revoked the work permits for migrants and refugees from Cuba, Haiti, Nicaragua, and Venezuela who arrived under a Biden-era program.

“I’ve just spent my morning firing good, honest people because the federal government told us that we had to,” Rachel Blumberg, president of the Toby & Leon Cooperman Sinai Residences of Boca Raton, a Florida retirement community, said in a video posted on LinkedIn. “I am so sick of people saying that we are deporting people because they are criminals. Let me tell you, they are not all criminals.”

At Goodwin House, Conteh is fearful for her fellow immigrants. Foreign workers at Goodwin rarely talk about their backgrounds. “They’re scared,” she said. “Nobody trusts anybody.” Her neighbors in her apartment complex fled the U.S. in December and returned to Sierra Leone after Trump won the election, leaving their children with relatives.

“If all these people leave the United States, they go back to Africa or to their various countries, what will become of our residents?” Conteh asked. “What will become of our old people that we’re taking care of?”

KFF Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about KFF.

Subscribe to KFF Health News’ free Morning Briefing.

This article first appeared on KFF Health News and is republished here under a Creative Commons license.

The post Dual Threats From Trump and GOP Imperil Nursing Homes and Their Foreign-Born Workers appeared first on kffhealthnews.org



Note: The following A.I. based commentary is not part of the original article, reproduced above, but is offered in the hopes that it will promote greater media literacy and critical thinking, by making any potential bias more visible to the reader –Staff Editor.

Political Bias Rating: Center-Left

This content primarily highlights concerns about the impact of restrictive immigration policies and Medicaid spending cuts proposed by the Trump administration and Republican lawmakers on the long-term care industry. It emphasizes the importance of immigrant workers in healthcare, the challenges that staffing shortages pose to patient care, and the potential negative effects of GOP policy proposals. The tone is critical of these policies while sympathetic toward immigrant workers and advocates for maintaining or increasing government support for healthcare funding. The framing aligns with a center-left perspective, focusing on social welfare, immigrant rights, and concern about the consequences of conservative economic and immigration policies without descending into partisan rhetoric.

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Kaiser Health News

California’s Much-Touted IVF Law May Be Delayed Until 2026, Leaving Many in the Lurch

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kffhealthnews.org – Sarah Kwon – 2025-06-25 04:00:00


California lawmakers are set to delay the state’s new IVF insurance coverage law, originally effective July 1, to January 2026. Governor Gavin Newsom requested the postponement to resolve coverage details like embryo storage and donor materials. The law mandates large employers’ health plans to cover infertility diagnosis and treatment, including up to three egg retrievals and unlimited embryo transfers, benefiting nine million people, including same-sex couples and single parents. The delay has caused uncertainty and frustration among patients and employers. If not delayed, enforcement begins July 1, but most employers renew contracts in January, delaying coverage start anyway. Lawmakers will vote soon.


California lawmakers are poised to delay the state’s much-ballyhooed new law mandating in vitro fertilization insurance coverage for millions, set to take effect July 1. Gov. Gavin Newsom has asked lawmakers to push the implementation date to January 2026, leaving patients, insurers, and employers in limbo.

The law, SB 729, requires state-regulated health plans offered by large employers to cover infertility diagnosis and treatment, including IVF. Nine million people will qualify for coverage under the law. Advocates have praised the law as “a major win for Californians,” especially in making same-sex couples and aspiring single parents eligible, though cost concerns limited the mandate’s breadth.

People who had been planning fertility care based on the original timeline are now “left in a holding pattern facing more uncertainty, financial strain, and emotional distress,” Alise Powell, a director at Resolve: The National Infertility Association, said in a statement.

During IVF, a patient’s eggs are retrieved, combined with sperm in a lab, and then transferred to a person’s uterus. A single cycle can total around $25,000, out of reach for many. The California law requires insurers to cover up to three egg retrievals and an unlimited number of embryo transfers.

Not everyone’s coverage would be affected by the delay. Even if the law took effect July 1, it wouldn’t require IVF coverage to start until the month an employer’s contract renews with its insurer. Rachel Arrezola, a spokesperson for the California Department of Managed Health Care, said most of the employers subject to the law renew their contracts in January, so their employees would not be affected by a delay.

She declined to provide data on the percentage of eligible contracts that renew in July or later, which would mean those enrollees wouldn’t get IVF coverage until at least a full year from now, in July 2026 or later.

The proposed new implementation date comes amid heightened national attention on fertility coverage. California is now one of 15 states with an IVF mandate, and in February, President Donald Trump signed an executive order seeking policy recommendations to expand IVF access.

It’s the second time Newsom has asked lawmakers to delay the law. When the Democratic governor signed the bill in September, he asked the legislature to consider delaying implementation by six months. The reason, Newsom said then, was to allow time to reconcile differences between the bill and a broader effort by state regulators to include IVF and other fertility services as an essential health benefit, which would require the marketplace and other individual and small-group plans to provide the coverage.

Newsom spokesperson Elana Ross said the state needs more time to provide guidance to insurers on specific services not addressed in the law to ensure adequate and uniform coverage. Arrezola said embryo storage and donor eggs and sperm were examples of services requiring more guidance.

State Sen. Caroline Menjivar, a Democrat who authored the original IVF mandate, acknowledged a delay could frustrate people yearning to expand their families, but requested patience “a little longer so we can roll this out right.”

Sean Tipton, a lobbyist for the American Society for Reproductive Medicine, contended that the few remaining questions on the mandate did not warrant a long delay.

Lawmakers appear poised to advance the delay to a vote by both houses of the legislature, likely before the end of June. If a delay is approved and signed by the governor, the law would immediately be paused. If this does not happen before July 1, Arrezola said, the Department of Managed Health Care would enforce the mandate as it exists. All plans were required to submit compliance filings to the agency by March. Arrezola was unable to explain what would happen to IVF patients whose coverage had already begun if the delay passes after July 1.

The California Association of Health Plans, which opposed the mandate, declined to comment on where implementation efforts stand, although the group agrees that insurers need more guidance, spokesperson Mary Ellen Grant said.

Kaiser Permanente, the state’s largest insurer, has already sent employers information they can provide to their employees about the new benefit, company spokesperson Kathleen Chambers said. She added that eligible members whose plans renew on or after July 1 would have IVF coverage if implementation of the law is not delayed.

Employers and some fertility care providers appear to be grappling over the uncertainty of the law’s start date. Amy Donovan, a lawyer at insurance brokerage and consulting firm Keenan & Associates, said the firm has fielded many questions from employers about the possibility of delay. Reproductive Science Center and Shady Grove Fertility, major clinics serving different areas of California, posted on their websites that the IVF mandate had been delayed until January 2026, which is not yet the case. They did not respond to requests for comment.

Some infertility patients confused over whether and when they will be covered have run out of patience. Ana Rios and her wife, who live in the Central Valley, had been trying to have a baby for six years, dipping into savings for each failed treatment. Although she was “freaking thrilled” to learn about the new law last fall, Rios could not get clarity from her employer or health plan on whether she was eligible for the coverage and when it would go into effect, she said. The couple decided to go to Mexico to pursue cheaper treatment options.

“You think you finally have a helping hand,” Rios said of learning about the law and then, later, the requested delay. “You reach out, and they take it back.”

This article was produced by KFF Health News, which publishes California Healthline, an editorially independent service of the California Health Care Foundation. 

KFF Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about KFF.

USE OUR CONTENT

This story can be republished for free (details).

KFF Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about KFF.

Subscribe to KFF Health News’ free Morning Briefing.

This article first appeared on KFF Health News and is republished here under a Creative Commons license.

The post California’s Much-Touted IVF Law May Be Delayed Until 2026, Leaving Many in the Lurch appeared first on kffhealthnews.org



Note: The following A.I. based commentary is not part of the original article, reproduced above, but is offered in the hopes that it will promote greater media literacy and critical thinking, by making any potential bias more visible to the reader –Staff Editor.

Political Bias Rating: Center-Left

This content is presented in a factual, balanced manner typical of center-left public policy reporting. It focuses on a progressive healthcare issue (mandated IVF insurance coverage) favorably highlighting benefits for diverse family structures and individuals, including same-sex couples and single parents, which often aligns with center-left values. At the same time, it includes perspectives from government officials, industry representatives, opponents, and patients, offering a nuanced view without overt ideological framing or partisan rhetoric. The emphasis on healthcare access, social equity, and patient impact situates the coverage within a center-left orientation.

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