News from the South - North Carolina News Feed

Chapel Hill family starts nonprofit after twin daughters diagnosed with rare disease

Published

2 months ago

August 3, 2025

www.youtube.com – ABC11 – 2025-08-03 12:04:15

SUMMARY: The Khan family’s lives changed when their twin daughters, Amelia and Mackenzie, were diagnosed with juvenile Batten disease, a rare genetic disorder causing vision loss, seizures, and loss of mobility. Devastated but determined, they founded the nonprofit Four Batten Foundation in 2017 to support research and the Batten community. Through an annual online golf auction, they raised over $8 million. After moving to Chapel Hill in 2022, they partnered with UNC researchers, leading to an FDA-approved clinical trial for a tailored drug. Although not a cure, the treatment improved mobility and happiness, enhancing the twins’ quality of life and offering hope for future therapies.

“I didn’t understand how I would ever smile or laugh again,” Karen Kahn said.

More: https://abc11.com/post/juvenile-batten-disease-chapel-hill-family-start-nonprofit-after-twins-diagnosed-rare-disease/17404793/
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News from the South - North Carolina News Feed

White House officials hold prayer vigil for Charlie Kirk

Published

3 days ago

September 14, 2025

Staff Editor

www.youtube.com – ABC11 – 2025-09-14 22:40:21

SUMMARY: Republican lawmakers, conservative leaders, and Trump administration officials held a prayer vigil and memorial at the Kennedy Center honoring slain activist Charlie Kirk, founder of Turning Point USA. Kirk was killed in Utah, where memorials continue at Utah Valley University and Turning Point USA’s headquarters. Police say 22-year-old Tyler Robinson turned himself in but has not confessed or cooperated. Robinson’s roommate, his boyfriend who is transitioning, is cooperating with authorities. Investigators are examining messages Robinson allegedly sent on Discord joking about the shooting. Robinson faces charges including aggravated murder, obstruction of justice, and felony firearm discharge.

White House officials and Republican lawmakers gathered at the Kennedy Center at 6 p.m. to hold a prayer vigil in remembrance of conservative activist Charlie Kirk.

https://abc11.com/us-world/
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News from the South - North Carolina News Feed

Family, friends hold candlelight vigil in honor of Giovanni Pelletier

Published

4 days ago

September 14, 2025

Staff Editor

www.youtube.com – ABC11 – 2025-09-14 13:47:52

SUMMARY: Family and friends held a candlelight vigil in Apex to honor Giovanni Pelletier, a Fuquay Varina High School graduate whose body was found last month in a Florida retention pond. Giovanni went missing while visiting family, after reportedly acting erratically and leaving his cousins’ car. Loved ones remembered his infectious smile, laughter, and loyal friendship, expressing how deeply he impacted their lives. His mother shared the family’s ongoing grief and search for answers as authorities continue investigating his death. Despite the sadness, the community’s support has provided comfort. A celebration of life mass is planned in Apex to further commemorate Giovanni’s memory.

“It’s good to know how loved someone is in their community.”

More: https://abc11.com/post/giovanni-pelletier-family-friends-hold-candlelight-vigil-honor-wake-teen-found-dead-florida/17811995/
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News from the South - North Carolina News Feed

NC Courage wins 2-1 against Angel City FC

Published

4 days ago

September 13, 2025

Staff Editor

www.youtube.com – ABC11 – 2025-09-13 22:43:31

SUMMARY: The North Carolina Courage defeated Angel City FC 2-1 in Cary, ending their unbeaten streak. Monaca scored early at the 6th minute, followed by Bull City native Brianna Pinto’s goal at the 18th minute, securing a 2-0 halftime lead. Angel City intensified in the second half, scoring in the 88th minute, but the Courage held firm defensively to claim victory. Pinto expressed pride in the win, emphasizing the team’s unity and playoff ambitions. Nearly 8,000 fans attended. Coverage continues tonight at 11, alongside college football updates, including the Tar Heels vs. Richmond game live from Chapel Hill.